Tag Archives: shortness of breath

Some progress on the physical stuff (or, at least a direction to look in)

Saw the pcp on Tuesday.

L had the idea to make a comprehensive list of all the symptoms that have come up in the past year or so. It helped tremendously! We were able to give it to Dr. S, and she was able to get a better picture of things. She’s thinking that a lot of it can be related to a potential cervical vertebrae problem; we just have to figure out imaging. I have a chest piercing that had the radiology nurse really uncomfortable last time, enough that she said they would refuse to do further imaging from the waste up unless I had it removed… that would take a surgical procedure, and I’m just not interested in losing it forever if I can find another center that will do the imaging… so I’m waiting to hear back from her office about the next steps around that.

She’s also going to set up a referal for a second opinion on the neurology side of things, but I have to send her a copy of the neuropsych report so she can include it in the referral. I have that pulled together, just need to make it out to the post office to mail it.

I really hope something is figured out around this, and I hope there’s an easy, painless, non-invasive fix for it…

In the mean time, we are trying meloxicam for the pain… I took the first dose tonight, and I’m wired. The first 2 hours after I took it, I felt hyper, as if I’d taken an upper. I hope, if that’s one of the ways my body reacts to it, that it goes away soon. It actually helped the pain for those two hours, but it wore off quickly… it was the lowest dose though, so maybe a higher dose will help longer? I dunno, but it was nice to feel pain-free for those 2 hours or so.

So, we’re have some other things to look into. Hopefully one of them will yield answers.

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update on Neuro appointment

I had an appointment with the neurologist yesterday morning. He took history, did a Neuro exam, and did some nerve testing on my arm. I have to go back tomorrow morning for the same testing on my legs… I’m kinda anxious about the testing on my leg. It’s not really painful or scary, but I expect it to be triggering. He’ll use mild electric current and sensors to test nerve conduction (there’s also a needle part, but I’m trying not to think about that).

There are two potentially triggering times; 1) if he tests nerves above the knee (I’m thinking about insisting that the testing remain below the knee. I don’t really care if it doesn’t yield complete results. My goal is to avoid flashbacks and panic while he’s got needles stuck in my muscles). 2) later tomorrow night when the points he tested are sore and cramping. With my arm, it felt like someone was pushing their thumb into my arm at those spots. It was uncomfortable, but I could talk myself out of panic because it was just my arm. I’m not confident I’d be able to do that if I felt the same on my thigh. I don’t really think the leg test will show any results different from my arms, so there’s no need to risk a flood of triggers and flashbacks, especially with Dr C still on vacation for 2 more weeks. I know I could talk to her fill-in about it, but that would only come after a weekend of dealing with it… I’m not really up for that right now.

Is that a stupid choice in terms of diagnosis? I dunno. So far, everything’s come back normal except for the d-dimer test. If nerves in my arms aren’t damaged, there’s little likelihood nerves in my leg are. After all, my arms often hurt more than my legs, and I’ve not experienced the same weakness with them. So, yeah. I think I’ve decided to insist that he keep the testing below the knee.

He’s also ordering a special blood test, though I forgot to ask what he’s testing (will do that tomorrow).

I’m not really much closer to answers at this point. It’s still very frustrating.

L and I took the dogs out to a park today. It was really nice to get out, and I pushed myself physically because I’m stubborn and I really miss being in nature. We sat or rested 2/3 of the time (much to the dogs’ frustrations), but it was nice. I’m now paying the price for my stubbornness. My muscles are complaining (weak, tense, painful), and I’m super fatigued. I’ve even gone back to taking pot several times since the outing because of the pain… on the plus side, while I still had a lot of trouble breathing, it wasn’t nearly as bad as 2 weeks ago. The inhaler helped some. The Advil helped some. The pot helped some… and I was able to catch my breath about an hour after getting home. Not bad considering it would have taken more than twice that long even last week.

Anyway. I guess I just needed to write out my reasoning for limiting the testing he will do tomorrow. I know it might sound stupid to some, but… flashbacks suck.

Here’s hoping something brings definitive answers.