Tag Archives: forgetting

D.E.S. results chat

Talked to Dr C about the results from the assessment, and I took it again with her. I scored a 44 this time… we looked up the scoring; doesn’t look like you can score much higher than a 50… I’m not DID though, so…? I dunno. 

I had questioned how reliable my self-report could be if my score changed so much in just a day. I questioned if maybe I was exaggerating things on the questionnaire. She said that it sounded more like I was trying to downplay my experiences (I was talking to her about a few of the questions).  I have trouble quantifying my experiences, so I’m not sure I answer the same way each time. She said that the test was statistically quite accurate and reliable. She also mentioned that one of the underpinnings of dissociation is not being able to remember the act of dissociating. So, I guess that’s another check in the “you’re really fucked up chicky-do” column… :/

She asked if I was worried about a DID diagnosis. I reflexively answered “no” because I don’t see it as that bad & because I’ve seen DDNOS on my records, so others don’t think it’s that bad. I think I’ve talked to her another time about it also, and I think I remember ruling out DID, so there’s that… but on the way home, I kinda panicked about whether her thoughts on it were evolving to lean more towards that diagnosis. I just text her asking if she was seeing DID. I’m not sure she will answer that through text or not, but as long as we address it at some point, I think I’ll feel better about it. 

I know my dissociation can be severe at times because I’ve completely lost days, weeks, and even months in the last decade. I guess I just don’t think it’s that severe all the time. I don’t see too much evidence pointing to DID other than L’s frustration around never knowing what to expect from me in terms of likes and dislikes…

We chatted more about dissociation and the functions of it. We talked about other coping skills for handling the body sensations and the flashbacks. I think she kinda came to the conclusion that even my healthier coping skills utilize dissociation to a degree. We talked about the writing and the art, and how I often don’t really remember what was created. We did differentiate the “flow” of creating vs more dissociative aspects of it. I think with both the art and the writing, part of the creative process is having no real direction and letting the piece take over its own evolution. It’s when I can’t recall writing something (like a blog entry) or creating something, that the dissociation plays a bigger role in that coping strategy… there are definitely some things I have to look at over and over again because they seem familiar, but I don’t connect to having made them.

Dr C commented that dissociation, especially such intense dissociation, takes a lot of energy. I countered that it’s actually the least draining of my coping skills, but now that I think about it, I wonder if that contributes to the constant exhaustion. I know some of it is the depression, but maybe she’s right; maybe the dissociation is exhausting as well. 

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Do You have Athazagoraphobia?

An interesting concept to think about.

I used to chalk my belief up to a weird perversion of object permanence. I guess this kind of is exactly that. I tend to believe if people don’t see me and interact with me regularly, they forget me. I get the impression it actually happens. I also fear that people find me really annoying and distasteful to be around. I have trouble reaching out to friends and family because I worry that 1) they hate me, and because of that, they 2) consciously try to forget me or remain away from me.

Lemme tell you, it frustrates my friends. I can’t tell you how often I get asked why I didn’t call or come by… How do you explain that you feel like people would rather gouge their eyes out than have to spend a moment with me?

There was another part that stuck out to me: the fear of forgetting. I often hoard memorabilia, and I journal incessantly in an effort not to forget more than I already have. People call it materialistic or anal, but I keep hoping an object connected to a memory will keep the memory alive. When so much of my past is a huge blank, I grasp at anything that may help me to not forget… Sadly, it doesn’t really work. I go back and read journals but cannot connect to them or remember accurately what I was talking about. I look at items from my past, and have no clue what they were from, or who gave them to me. I take pictures all the time hoping photographic evidence will trigger a memory, yet so much is still lost. It’s not as bad as it had been before college, but it’s still there. One of the worst memories to have lost is my first date with my wife. I know what she has recited to me over the years, but the rest is super foggy. I have snippets of moments from the night, but most of it is gone. It’s no reflection on her or the night (because I’m still with her, and we went on a second date relatively soon at my initiation). It’s just “the story of my life”…

But I digress. This is an interesting blog on a phobia I had not heard of before, but one that makes perfect sense to me.

 

Discussing Dissociation

Drawn by ... On deviant Art. Drawn by rhyme-my-name.deviantart.com

Athazagoraphobia.

I have learned a new word today.

Athazagoraphobia.

Athazagoraphobia is the fear of being forgotten, ignored, or being replaced.

Athazagoraphobia.

Ooooh boy, what a powerful word that relates to intense feelings held by soooo many dissociative trauma survivors. And since abandonment and neglect is often a huge and prominent part of the trauma history, is there any wonder?

First, let’s learn more about athazagoraphobia.

Here is a quote from http://www.fearof.net :

“Athazagoraphobia is a rarely discussed phobia. It means the fear of forgetting or the fear of being forgotten or ignored. Thus, Athazagoraphobia is of two types or has dual components: it might be seen in dementia patients in their early stages (or patients suffering from other medical conditions where memory loss occurs) where they fear forgetting their own identity and other things. Alternatively, it may be seen in spouses or caregivers of Alzheimer’s/dementia patients…

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spent

I know De and I met today, and we talked about a lot of stuff, but I’ve already lost the specifics.  I had gone in feeling spent, and the session just intensified the feeling.  I remember playing with playdoh and what I made, but I don’t really remember the content.  I know when we talked about remembering things, I made an elephant without realizing it.  When we switched the topic to moods, I ended up with a creature face that matched the mood we happened to be talking about at the moment… I noticed all these things because I was not really making them on purpose, just ended up with them as we were talking.  I made sure to take mental note of the connections, but I am not totally sure she noticed them.

I returned home spent and tired.  I took a 2 hour nap, then had a heavy conversation with mom.  I remain spent all day.  I just feel drained and out of “fight”.  There’s only so long I can go defending myself and standing up for myself before I lose steam.  Today took everything out of me.  I don’t even want these stupid beers I opened and inherited (L did not like hers, so now I have 2)…