Category Archives: Uncategorized

Some progress on the physical stuff (or, at least a direction to look in)

Saw the pcp on Tuesday.

L had the idea to make a comprehensive list of all the symptoms that have come up in the past year or so. It helped tremendously! We were able to give it to Dr. S, and she was able to get a better picture of things. She’s thinking that a lot of it can be related to a potential cervical vertebrae problem; we just have to figure out imaging. I have a chest piercing that had the radiology nurse really uncomfortable last time, enough that she said they would refuse to do further imaging from the waste up unless I had it removed… that would take a surgical procedure, and I’m just not interested in losing it forever if I can find another center that will do the imaging… so I’m waiting to hear back from her office about the next steps around that.

She’s also going to set up a referal for a second opinion on the neurology side of things, but I have to send her a copy of the neuropsych report so she can include it in the referral. I have that pulled together, just need to make it out to the post office to mail it.

I really hope something is figured out around this, and I hope there’s an easy, painless, non-invasive fix for it…

In the mean time, we are trying meloxicam for the pain… I took the first dose tonight, and I’m wired. The first 2 hours after I took it, I felt hyper, as if I’d taken an upper. I hope, if that’s one of the ways my body reacts to it, that it goes away soon. It actually helped the pain for those two hours, but it wore off quickly… it was the lowest dose though, so maybe a higher dose will help longer? I dunno, but it was nice to feel pain-free for those 2 hours or so.

So, we’re have some other things to look into. Hopefully one of them will yield answers.

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Hypersensitivity to smells (gonna whine now, feel free to skip reading this)

Back in November-ish, smells started to bug me. I’m not pregnant; I’m 100% sure of that, but strong (and many food) smells turn my stomach.

I mentioned it to my doctor, and she suggested I contact a local taste and smell clinic. They have a long wait, and I just sent out my paperwork yesterday, but I’m hoping they can give me some answers.

The hypersensitivity to smells is just one more thing that seems to be piling on to my list of weird symptoms that come along with the muscular pain.

While I’m waiting to hear back from the clinic, I’m struggling to get through the day dealing with most smells making me very uncomfortable. I’m hyper aware of the smokers in the building, I can’t stand the smell of cooking food… it’s so uncomfortable, I find myself wanting to cry (well, that & the muscle pain/cramps). Mint is a tolerable smell, so I’ve gotten into the habit of dabbing mentholatum rub under my nose to curb the nausea…

I dunno… the clinic’s website says they generally can only help about 1/3rd of the people they assess. I hope I fall into that 33%; I don’t want to have to live with this hypersensitivity (though my mom also has a similar intolerance for smells. She developed it in adulthood…)

I’m so tired and run down. Triggers around loss abound, and it’s not helping anything at all. A friend’s 6-year-old daughter died unexpectedly Sunday morning (in her sleep, cause as yet unknown, though she had several serious medical issues), it’s coming up on the anniversary of Chow’s death, my brothers in law’s dog passed away the same day I felt like someone died, but couldn’t think of any anniversary… and my 40th birthday is around the corner. I don’t feel 40. I don’t want to be 40. I shouldn’t have ever lived this long… Dr. C suggested that maybe this dread of age is rooted in past experiences (especially since it’s paired with the feeling that someone’s passed away)… it kinda makes sense… doesn’t matter though, since she’s now off for 2.5 weeks in the tropics, so I can’t really process that with her beyond Monday’s brief conversation.

I guess I have a fair amount of reasons to cry, but it still feels unwarranted… I’m just so tired.

The depression hit super hard a week ago Monday, and very suddenly; it felt like a switch was flicked. The intense depression hit, the muscle cramps and pain started, that bitter taste came back (it colors everything I eat or drink)… the smell thing is just intensifying… it’s all so oppressive…

So yeah, whining…


worthlessness

More questions for y’all:

How do you overcome worthlessness? If you’ve always felt like you had miles extra to make you worth basic human considerations, how do you inch up that gargantuan ladder?

Intrinsic worthlessness has been a topic of conversation lately, in both therapy, and the rest of my life.

The biggest obstacle I’m hitting is my lack of ability to make any part of this service dog thing happen. Every time I get even a hint of savings towards a prospect, something comes along to wipe it out. At this rate, I’ll be dead before I have enough money for an appropriate pure-bred prospect… and I’m not sure I’ll have the energy to follow through on the level of training needed for a successful and bomb-proof service dog.

My inability to save makes me second guess if I’d really actually benefit from one enough to put in this much effort. I only have so much energy, and mine’s fast running out. The holidays have been a huge drain this year. I barely have enough energy to be politely social with people, forget trying to figure out how to make a service dog work.

So, yeah. How do you overcome intrinsic worthlessness? How do you trick yourself into being ok with having needs, or asking for something, or feeling ok with extra effort to make something work?


Insomnia

That fear of going to sleep is back. It’s not debilitating, but it’s making it difficulty to get rest.

It’s not really connected to anything in the present, I’m just anxious and uncomfortable about going to sleep, even of I’m exhausted.

I used to be ok if i stayed on the couch, but lately it’s there too. I suddenly don’t like night time, though I’m paradoxically most comfortable in the dark (or, part of me is because even as I write that, it doesn’t totally ring true. Part of me has always been uncomfortable with the dark hours, but part of me feels most comfortable there… it’s so confusing sometimes).

Anyway, I’m nervous about going to sleep. I’m nervous about the nighttime… and I’m out of the mj that helps me sleep, so there really isn’t relief.

I’m exhausted, but I’m afraid to sleep. Even of I get sleep, I don’t feel rested, but i also feel the need to keep going. I’m having trouble just sitting still, or just being. I need to be occupied. I need to have my mind focusing on something else. I need to avoid thinking and feeling at all costs… it feels like I’m running from something, but again, I’m not quite sure what.


dumb question…

can you have flashbacks of non- trauma memories?

Or, at least I don’t think that bit was traumatic…

It happened at mil’s house tonight, both the kids were doing their homework. Our great niece kept doing anything but reading, and MeeMa kept telling her to “read [her] book”. For a few seconds, I was a kid, hearing that same phrase while doing homework… it was my aunt saying it? Or maybe my mom? I’m not really sure, but it was an adult female in the family and it wasn’t bitch… Or maybe it was?

It was so strong in the moment that it happened, but it’s mostly faded now.

I did recall feeling uncomfortable, like i was waiting for more fighting, but… it was such a weird moment… and it wasn’t a flashback directly to a domestic violence moment (the only kinds that come with visuals and sound for me. The sa memories are 90% physical with only the vaguest sense of what the situation actually was)…

I dunno… it felt so real though, and it’s so dissolved now…


That escalated quickly (in a good way)

So, I’ve been half-heartedly researching the idea of acquiring a service dog for years now. I think having one would be a good idea, especially with my current physical crap.

So, I casually threw a request out on fb yesterday, mostly asking basics like if anyone had leads on reputable organizations that train for mobility/assistance work & ptsd/psychiatric work.

A trainer friend responded.

We got to talking about what I was looking for in an s. d., thoughts on training my own, and where to look for prospects.

Before I knew it, we had a plan mostly together to find me a dog and begin training.

I didn’t exactly expect to move this fast, but the idea of having support and assistance in the form of a dog is relieving.

I really dislike bugging people for things. Having a trained service dog will mean I don’t have to make sure someone is with me to carry things, or to help open doors when I get fatigued, or to help me ground from flashbacks.

This is awesome! (Intimidating also, because I worry about my ability to be consistent, but my friend said she’ll be there to help)…

Now, to round up the cash for the dog, vet bills, and training…

Another friend has been bugging me to make her some play therapy figurines. She’s taking this opportunity to get me to follow through. She offered to cut me in on profits of any of the pieces I make to help raise money for this venture.

I’m also thinking of doing some smaller pieces of art to sell as a way to raise more money.

I seriouslly dislike the concept of handouts (it always feels like there are strings attached), so selling stuff to make cash will be a way of avoiding having to ask people to give me money…

Now, to figure out what to try to sell for a fundraiser. Thoughts?


more stupid triggers

I had a neoropsych assessment last week in hopes that it help point us in a direction for this weird physical stuff I’m experiencing.

During the assessment, the psychologist was flipping pages in a booklet, showing me pictures of stuff I needed to try to remember. At one point, I stated losing track of what the pictures were, and started focusing on her hand turning the pages, and what the paper sounded like. It wasn’t really a conscious thing, just my attention switching. The sound of the pages turning became the loudest thing in my head, and I couldn’t see anything but her hand. It only lasted a few seconds, but it was enough to trigger something. I started feeling body stuff in the middle of this test that shouldn’t be triggering or disturbing… She caught on that something was up, and I told her that her turning the pages were triggering for some reason I couldn’t pinpoint (and still really can’t). She continued with the testing, but let me turn the pages from then on.

It’s seriously the stupidest little things that hit me out of nowhere… wtf??

Some days I want to scream at the memories to leave me alone and let me continue on with my life.

Oh, so the preliminary results (mostly just from her knowing the general average results, without any real scoring yet) have my verbal memory functioning at “seriously impaired”. She suggested that it’s likely due to the medical marijuana, but since it’s the only real thing that helps the ptsd, to keep taking it. Overall, the verbal memory impairment is less problematic than the impairment from the symptoms it treats… this might be the one time I agree with the phrase “the benefits outweigh the side effects”.