Daily Archives: May 2, 2018

Learning my new limits

As much as this muscular stuff has been getting better, it’s still here. I’m able to do more and function better, but I’m still bumping into my new limits on a regular basis.

Yesterday, we cleaned the apartment (it desperately needed it). We both took it slow, but both did quite a bit. By yesterday evening, I was feeling the effects.

I found I get pressure headaches from changing position often (bending and crouching to clean under furniture, or to move things around). This morning, I noticed it’s helped a bit if I put slight pressure at the base of my neck, pushing upwards.

My muscles are also cramping again. They are sore and tense.

So what am I doing today? Being stubborn and getting laundry done.

I’m sure I’ll be a lump for the rest of the day. Heck, I’d love to be a lump right now, “but I have shit to do, and an appointment on [Thursday]…” (ani difranco).

I finally managed to get to the lab on Monday at the proper time for them to send out my bloodwork for the specialized test the neurologist ordered. I also got a chance to look at the name of the test so I could look up more info about it; MuSK. I can’t remember exactly what it is, but it’s looking for specific antibodies that interfere with something or other, that then causes muscles to tire faster. (Great explanation, I know. But I just skimmed the info while at the lab, and can’t remember details right now). Anyway… yeah. It’s looking for indications of a disease called myesthesis gravis? Maybe that’s what it’s called? I dunno. Again, memory on specifics is sketchy, and I’m being lazy about looking it up.

So yeah, waiting on those results. I’m not sure if I should hope it’s that, or hope it’s still all just related to the OSDD. It would be nice to have some definitive answers, and a course of treatment (though there’s apparently no cure)…

Back to the grind now. Laundry will need to be folded, and then I’m back home for a few before jetting off to pick L up from work…

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