Monthly Archives: April 2018

family

I think that word has very different meanings for me.

We were always taught separation. My dad’s blood family was all that mattered to him, so that’s all he acknowledged. Everyone else was just “shit”. He didn’t promote contact with anyone outside his immediate family of origin (foo). We were isolated from almost everyone else, and even within his own foo, bitch was top, then him, then grandma, then K. Mom factored very little. K’s husband, T factored very little. Moms family was just unheard of (he made sure of that). We talked a bit about them and to them, but overall, they were essentially non-existent (in his eyes anyway).

I’ve only recently (like maybe the last decade or so) gotten in somewhat more regular contact with one of my cousins. We chat online a bit, but I think I’ve only seen her maybe 6 times my entire life (and we lived relatively close, like maybe a 4 hour drive, for several years). I’ve seen her parents a few more times, but that was only after she & her siblings had grown up and moved out… even then, I think I can count less than a dozen times.

Tonight, my mom informed me that her brother (my cousins’ father, my uncle) had gone to the hospital for a head injury. Apparently, this happened sometime last week, and no one thought to tell us (at least my brother and I. Mom may have known, but she’s not big on communicating stuff like that about/with anyone).

When I found out, it hit me just how disconnected I am from my extended family; I have no real emotions around him being in seriously ill health… I’m not even all that connected to any emotions my mom may have around it (though she’s never been big on emotions either. None of my family has).

I feel like it’s wrong somehow, like society is generally connected with their families unless there’s been some big rupture. The only rupture was my father. I should be connected with my aunt & uncle & cousins, but I’m not… and I think I’m a bit resentful about it.

I see L with her family (it’s a HUGE family), and I feel like we got the short end of the stick.

My dad made enormous effort to keep us isolated from everyone.

It sucks.

So now I have no real connection to family. I get the concept that we have an extended family, but… it’s just not in my radar for the most part. And I’m mad.

His isolation enabled the abuses that happened night after night. His anger resulted in a fear of reaching out, or attempting to connect with anyone (after all, any connection would be promptly severed once found out). We weren’t allowed to care for anyone outside the little dysfunctional circle that happened to include his foo…

The dissociation doesn’t help any. I feel like I’m just floating in a world where I don’t belong (or even truly exist). People have no clue about so much of my life. Everyone’s merely an acquaintance. Aside of L (and as of today, our friend DO), no one knows I have a dissociative disorder. At most, they’ve been told I have ptsd, but no one knows what it’s from; they assume I served in the military…

Most everyone in my life sees this shell, this act. They might notice I hit some bumps along the way, but mostly, I’m either shy and awkward (99% of the time), or chatty and awkward. I’m the crazy animal lady with the pet snakes, who also does art here and there…

I feel like I don’t actually exist. I must just be a ghost floating around.

I never expect people to remember me from one meeting to the next, or care about anything about me. I’m the awkward tag-along friend you invite because you feel sorry for them. I’m the wife you tolerate because we come as a package deal. I’m really not sure why L married me. I’m just the awkward one tagging along behind her to family functions. I don’t deserve to be there, nor am I really wanted there, but I’m crashing the party…

I shouldn’t be here still. I have no purpose or usefulness… but here I am, tagging along in this weird body that feels like a poorly-fitting borrowed dress. If I think hard enough about it, I can kinda find some connection to the C they think they’re supposed to get, but… I dunno. It just feels like a suit, like pretend. That girl who graduated college? Not me. The one who had a career? Not me. The one with friends and family? Not me.

I’m just that shadow in the corner… nothing to notice or want to be around; no substance, no presence, no worth…


Re: dissociation

You know how sometimes the universe just smacks you upside the head when it really wants to drive something home? Well, that’s been happening a lot these last few days.

I spent a fair amount of time yesterday and the day before going back over old posts. I do that sometimes simply because I can’t remember much from day to day. Everything is compartmentalized between emotional states…

Anyway, in my fb feed today, there were several posts about trauma and dissociation. The latest one I read was a fairly in-depth article on DID, OSDD, and dissociation. It covers symptoms and diagnostic criteria, as well as links to assessment tools (though none are meant to diagnose alone, but rather in conjunction with assessments by a trained professional).

Anyway, I know I have an OSDD diagnosis. I remember that even when I’m not directly confronted by it. The part I seem to forget is that there has been conversation around changing that to DID… so imagine my reaction when reading the article and finding I petty much fit the diagnosis to a T… I was taken aback by it for a while, then I started to vaguely remember conversations with Dr C about me being on the DID end of the spectrum.

As the realization hit (apparently “again”), I started to panic a little. I decided to try the self assessments they mentioned. Yup. Wouldn’t you know, they peg me as correlating highly with others having a DID diagnosis. Great. So now I’m remembering a bit more about my conversations around it all with Dr C. I want to say I remember at least 4 different times when I was shocked by her mention of it, and then settling on calling it something more benign, like “severe dissociation” or “fractured ego states”…

It frustrates me that I seem to forget these conversations so completely until something pointing to it shoves itself into my awareness… how many more times will I “forget” about our conversations around the intensity of my dissociation? I guess I’m improving on it though, as it seems to take less time to “remember” we’ve talked about it before. The first two times or so, I didn’t realize it till she asked later if I remembered having that conversation before. At least now I don’t need her prompting before the memory sparks.

Anyway… I’m not really sure where I was going with this other than to link the page on DID.

Maybe I’ll post screenshots of my results from the 2 questionnaires. (and maybe next time I’m faced with this info, I’ll remember that I’ve heard it before)


Was that real?

I had originally started writing this blog to give myself something I could easily look back on when I found I had lost touch with various things in my life.

I’m often reading and rereading my posts in an effort to connect to them (and maybe memorize what I talked about?). There’s so much I forget from one moment to the next.

I now understand the forgetting to be a function of my most persistent and pervasive coping skill: dissociation. It’s taken me a long time to remember that understanding. Much like my continued shock and confusion around my extreme level of dissociation, I find myself “realizing” that I forget so much because I dissociate so often.

Much of the time, I find myself reading my posts as if I were reading someone else’s writing for the first time. It’s quite a surreal experience. I’ll recognize bits and pieces, but it still predominantly feels like someone else’s stories.

Its happened again this week. I found myself bopping around from post to post, taking it in as if for the first time. I recognize the people I’m referring to, but not the content of the posts. I wish I could come up with a “good enough” analogy to convey what it’s like… I’m not sure there is one. Maybe the closest I can come is comparing it to reading a creatively penned biography about yourself. The author has taken licence and added to the story you know your life to be, and has found others to corroborate their embellishments… it all feels like an aggrandized version of my life, with a lot of Hollywood “extra spice” thrown in… Maybe akin to reading the tabloid stories about yourself while at the checkout. It feels foreign.

I was telling A how my education and professional history was in mental health, but even as the words left my mouth, they felt like a lie. How in the world could I have done any of that? Sure, I have a decent understanding of basic psychology, but I also have a descent understanding of basic anatomy & phys, of animal behavior, of art techniques… most of those I picked up simply by reading because it was interesting. If I didn’t have my paperwork from school, and people who corroborate that I went to grad classes with them, I doubt I’d believe that it were possible.

I feel miles and miles away from that competant human being.

If I didn’t still have contact with the people I used to work with in the field, I would say my work history was made up… even my recent work in the kennels feels contrived (yet I have pictures to prove I was there).

Who the fuck dissociates so badly that they don’t remember so much of their life?!

It feels lately like all my memories are up in the air & uncertain like the trauma memories.

If I sit down and concentrate hard enough, I can pull together what I think is an ok narrative of a specific time in my life, but it feels like a rehearsed skit. To paraphrase an Ani Difranco song “I feel like an actor just reading my lines…” Its something I’ve practiced over and over again until I can recite it with confidence, even if I have no connection to it.

I’m going through life without actually connecting to any of it.

There are times I feel like an imposter; like a clone with implanted memories, but they forgot to include the emotion portion of it…

When I was reading posts from even last year, I found myself trying to analyze what I was reading, to figure out what parts could possibly be true, and figure out how to integrate it into the current narrative.

Part of me feels like I have written about this before, or at least talked to someone about it, but I’m not sure who or where…

There was a flicker of understanding a moment ago, but it’s gone now. My fingers weren’t fast enough to catch the thought on paper before it slid away again.

I’m slipping away again. I can feel things erasing from my awareness (like what I was writing about in the rest of this post). A fog is settling in.

Gotta love dissociation for no reason…


To Dr. C

Dr C,

Talking to A Monday brought stuff up, but I’m not totally sure what. There’s a lot of the past floating around, and I’m finding myself really easily startled and frightened…

My head was literally spinning today, it triggered vertigo somehow.

There’s body stuff I’m feeling, and… I don’t even know what else. My heart races over nothing. I feel shaky, like I haven’t eaten in days, but in reality, I’ve been stuffing my face. I wanted to cut; to destroy my body; to pulverized it and stab it and shred it and break it and burn it… and by my body, I mean my pelvic area, where the feelings are creeping in again.

I wish we hadn’t talked about body. The kid really wanted to reach out, but my mouth was glued shut. I wasn’t sure how to speak about it without just screaming… so I kept quiet.

Only now the things I didn’t say are finding other ways to be noticed.

I really wish you were here coz I could talk to you about it, but you are still away through Monday… I don’t feel comfortable bugging A about it. There would be too much to explain… she kept saying she didn’t know my history; she hadn’t read what you gave her. Part of me wished she had. That way I wouldn’t have to figure out how to cram an explanation into the session and still have time to address what was happening in the moment… or just skip it all together because I couldn’t condense it that far.

I can feel the anxiety rising again. There are memories and fantasies and fears all happening in my body at the same time. It feels like I’m throwing imaginary scenarios in to drown out whatever is trying to surface. Imaginary stuff that I create in my head is much easier to control (and tolerate) than the stuff that actually happened (maybe? They’re memories, right? They’re valid? Or maybe even those are all stories?…).

I want to do that body drawing stuff she mentioned because it feels like something the kid could use to communicate. He still needs a translator, but maybe that would help? He seems connected to the idea…

I want to try some more kid techniques sometimes. Maybe the stuff that’s stuck would become unstuck? The kid that talked to De while I colored really likes that idea too. She wants to do more of that. She liked talking… I think she told the boy, because he keeps peeking around the corner wanting to try it…

There’s really not these others inside, but it just feels like there are others there, and I just don’t have a better way to describe the feeling.

SJ’s gone. I miss her. She was the most brave about talking. She was the face of the other kids. I dunno where she went. The boy misses her too, and the other girl and little blue monster all miss her. She was both 7 and 70. She was protective, but little, but also… I dunno. A container for the other kids? Now that she isn’t here, the others have to speak for themselves? Maybe she split into them when she ran off? She was older when she left though. She felt… I dunno. She wasn’t really older, but now the memory of her feels older? Does that even make sense? She left as a kid, maybe 5 or 7, but now the memory of her leaving feels like a young adult having moved away from home to get on with her own life. She pops by to say hi every once in a while, mostly to the kids, but she’s moved on with her life… like the babysitter going off to college or something.

I know these are all constructs of my head to order and make sense of things (and to keep safe), but it feels so separate. It kinda feels like other people who maybe speak a foreign language, or are extended family, or something… I dunno.

And they shift and change over time. I guess it’s me shifting and changing things as my understanding does the same. Sometimes they make sense as they were, other times the narrative needs to change to compensate for discrepancies. I guess it makes total sense if you look at it all as constructs of my head to help navigate life… they change with my understanding and head-space.

I’m really glad you will be back next week. I hope the trip was fun. I’m really glad you are back (and I was really relieved when I saw you post stuff on ig)…


Long-term effects of growing up around violence

…Well, one long term effect. For me.

I worry about and see anger in everyone. I want to appease it, and apologize for it, even if it has nothing to do with me.

Perceived anger frightens me.

Someone was trying to get in the front door of our complex, but it’s locked. They walked back around. I’m assuming they grabbed a key, then tried again. They looked frustrated when it didn’t work.

I started to become scared. I wanted to both hide, and walk over to see if I could help in any way.

It had nothing to do with me, but I reacted as if I needed to fix it because they were mad at me specifically (I’m not even sure the woman knows anyone is home in my apartment)…

My heart is still racing. I’m still ambivalent. It happened 20 minutes ago.

I’m doing nothing wrong. The woman isn’t here for anything related to me, yet I’m scared she will come in and yell at me…

G would have done that. He was (and is) unpredictable and volatile.

This woman is not G.

I will keep repeating that to myself until my inner kid believes it (or stops the panic)


ramblings about interim therapists and trauma work and body stuff

I’ve been seeing another therapist in Dr C’s practice while she’s been away. It’s been weird, but helpful in maintaining balance, especially with all this physical stuff going on. I didn’t really talk to her about much outside of “safe” things (things going on in the moment, dealing with the physical stuff that doesn’t have a medical explanation yet (or ever?), surface stuff). There were times I wanted to cover other stuff that wove its way into the session, but I couldn’t open my mouth. It felt like my lips were glued together, and even if I did manage to open them, all that would come out were sobs and screams…

That’s not a new phenomenon for me. I’m not sure I’ve ever managed to open my mouth and tried to speak at a time like that. It taps into something I still don’t have an understanding of, and it never feels safe or comfortable enough to just let that part of me do whatever it needs to do for release… maybe I can bring it up with Dr C once she’s back again next week. I wish I could remember what it was that triggered that feeling.

I know before walking into the building, I had wanted to address the body memories that always get triggered (or more intense) when I get my period. We had kinda started taking about bodies, and how comfortable I was in mine (or not comfortable). We had talked a bit about liking or hating any particular part of my body. I said there wasn’t any part I liked. I should have said, there wasn’t any part I liked anymore because at one point, I had liked my eyes and my hands… but both have failed me since. My eyes either hide too much or tell too much; and my hands don’t create to my standards anymore (stupid trembling and fatigue). So no, right now there’s no part of me I like.

She also asked if there was any part I really hated. Of course there are parts I hate more than others, but there wasn’t enough time in the hour to tell her about it and still come out of the session balanced enough to go on with my day… I’m not totally sure I even want to write about it now, though there would be less explanation involved here than with her… I hate my pelvic area, and my stomach, and the insides of my legs. It’s where I feel the most uncomfortable memories, and what triggers the easiest. It’s the fastest way to send me to space…

A had asked if I’d ever done any body work (on paper) with Dr C. I told her I hadn’t, because even though Dr C had offered it, I panicked at the thought of tracing my body. A clarified that she meant doing it smaller scale. No, we never did do that… I’m not sure why the subject changed with A in that session. I think I started panicking and backpedaling into my head, because at some point, she asked how present I was & busted out a ball as a means of grounding (side note: it worked too! Who knew playing catch could actually bring me back? Normally, I can still do that stuff while dissociated. This time, the act of catching and tossing was balancing. Maybe it was the inconsistent way she did it? She would pause, look at the ball, change the speed of her toss… whatever it was, it worked).

Anyway… yeah. There were so many times I could have said more to her, but I didn’t want to get into it knowing that the hour would end too son, and I’d be left dealing with whatever came up for the rest of the week. At least with Dr C, I can reach out during the week if I need to. A did say to call if I needed anything, but I wouldn’t bother her. It takes me a long time to trust that it’s really ok to bug someone outside of the time they are getting paid to interact with me. Even with Dr C, I still hesitate much of the time, and I’ve worked with her on and off for almost 10 years now…

Oh, I remembered what I was originally going to say about the body drawing; it’s another thing where I feel frozen for fear of what I might do or say. There’s still that urge to destroy my body, even if it’s just a drawing. I still want to take a knife and stab the drawing on the parts I hate the most… or, since I no longer carry a knife with me, stab it with the pencil… that would probably freak her out, so… maybe some day I can mention that to Dr C, and we could find a way for me to be ok doing it in some form. The kid really wants to talk about it still. He has no words, just screams and sobs and anger… or silence. He’s usually just silent because the other stuff is not acceptable…

I really wish Dr C was back now. I wish this could be addressed while it’s still here & “relevant.” It’ll be gone again by next week. This is when that concept of easily accessible, more intensive treatment would be helpful; when stuff comes up and would benefit from being addressed in the moment, so it would be nice to be able to walk back into the room and get to work… let’s tackle this shit coz it’s here. Gimme that little body drawing, tack it to a tree, and let me stab the shit out of it. Let me rip it up and scream and cry and cover it in red paint so it bleeds like my body would if I did that to myself. Let me burn the page so it all goes up in smoke. He needs the release. I need the release…

Let me rip the legs off a toy, and bash it and destroy it… but then I’d need to apologize, because the toy did nothing, it’s just a receptacle for the anger. So let me run out into the woods and scream until my voice is hoarse, and my legs are so tired they want to fall off, and my breath burns in my chest (maybe my lungs would actually burn up. That would be an interesting medical & scientific impossibility)…

Sometimes the anger and the hurt is too much. Sometimes I want to disappear to a safe place where I can do something about it without weird looks and panic over my safety, because ultimately, I’ll be safe, this just all needs a release…

Why aren’t there trauma treatment centers in the middle of the woods, with animals and drop-in massage and art and yoga and holistic therapy like they have for substance abuse? And why is nothing local? Why is the only treatment center even remotely like that all the way across the country, and religious?! I want something with no BS about higher powers or gods or spiritual anything. Why does that not exist?! And why aren’t there more art or play therapists around? The kids want time too, but everything’s in an adult world, so they use translators instead…


Inconsistencies

It’s funny how my thoughts and opinions can be so different from one moment to the next.

I like raisin bran. I hate raisins. I know for sure I’m worthless. I fight for the things that matter to me because I matter. I’m seeking out adrenaline. I want nothing more than the safety of my corner of the couch…

It drives L nuts that she thinks she finally has me figured out, only to realize what she thought was accurate, is opposite to what I’m expressing in the moment.

They’re not all hugely drastic inconsistencies, but they are there… and they are enough to throw people off when they notice them.

Sometimes I wonder if my dissociation isn’t more than just spacing out. I know Dr C and I have had this conversation a few times, but right now I can’t remember what she said about it…

Part of me knows everything’s just an elaborate story because I’m just a bored teenager. I have a really active imagination. I can get lost in the books I read. I can picture what they talk about. I can feel the atmosphere, hear the sounds. It’s like watching a movie, but in my head… and the smells… they’re so real. Only I know I’m reading, so… I have a very vivid imagination.

When I was younger, I dreamt a huge white stallion visited me at night. He came back because of the horse shoe I found while playing in the backyard. He promised to keep me safe… it was such a realistic dream, but a dream none the less.

When we moved from Canada to Florida, I stopped talking as much. Before, in school, I would always get in trouble for chatting with my friends. Then we moved, and it all seemed pointless. What good were friends if you’d lose them anyway? And even if I did have friends, it’s not like I could talk about stuff. “You don’t talk about family business to outsiders”.

So I didn’t talk much. I listened. I became the good girl who didn’t talk much, and almost never got in trouble (there were two times, but i only really got in trouble the first time. I forged my dad’s signature on a note he was supposed to sign acknowledging that I missed a homework assignment. The teacher got really mad. She didn’t care that I begged her not to tell my dad; that my mom would sign the note, just don’t tell dad… she told him anyway. She thought I was being a brat about it, and wanted me to learn my lesson… joke was on her. Dad taught me how to properly forge his signature so next time I wouldn’t get in trouble. I cried that whole day, I was so scared. I didn’t talk the rest of the day in school… I learned my lesson, but I don’t think it was the one she meant me to learn. I thought he was going to kill mom he was so angry at her (because I embarrassed him & made him look like a bad parent). I can hear them fighting. I can hear her screaming to stop, to get off of her. But they weren’t fighting, they were just having “a discussion”…

It’s all a lie. I blow things out of proportion. That’s not what really happened. Nothing happened.

I used to read so many books that they refused to buy them for me anymore. I would get so lost, time meant nothing. Hunger meant nothing. Bodily sensations meant nothing.

I would devour a book a day, sometimes more than one.

He would tell stories to show how smart and learned he was. He spouted theories from physics and math and psychology and philosophy. He wanted to make sure we knew them, so we could make sure others knew we were better than them. No one was as smart as us, or as special, but he was specialest of us all, and smartest… only blood family mattered. The people who married in, or weren’t in his immediate family meant nothing; they were interlopers. They weren’t one of us… but no one was as worthy as he was. He deserved everything, and people should be honored that he paid them any attention at all, especially the interlopers… no one was as special and wonderful as he. Everyone outside the family was a stupid imbecile who didn’t know greatness if it punched them in the face. Everyone should do exactly as he said, because only he knew what was right and wrong, good and bad… and never talk about what goes on at home with anyone; can’t tarnish the family’s good name. Can’t bring him shame or embarrassment, or you get in trouble… mom got in a lot of trouble all the time. Anything that went wrong was her fault, and she could never do anything right. “How dare you give away my money?? MY money, that I slaved in a stupid foreign country alone for months for?? HOW DARE YOU?!”… “it was to your own kids”… “I DON’T CARE! IT’S MY MONEY. ALL OF IT!”…

I don’t want to remember the rest…


On using psych meds

… that Sarah Silverman tweet got me thinking…

There’s so much info and support out there for people taking meds, but nothing for people who react badly to meds.

I’m not sure I ever really talked in detail about my struggles with psych meds.

I tried them briefly in college, but came off of them after a short time (can’t remember why, or how long I was actually on them). Then, 4-6 years later, I was convinced to try them again. It was against my better judgement, but my therapist at the time was adamant that I needed them. I wanted to trust that she had a less biased view of things than I did, and that she was more knowledgeable about it all than I was. I battled her about it for several sessions before I caved and agreed to try them once again.

I had trouble finding a psychiatrist I felt comfortable working with. I must have cycled through 5 or 6 before I found one who I felt listened & cared (read: didn’t try to push the same meds I reported as having not worked when I tried them; wasn’t cold or condescending; sat with me for more than 3 minutes before handing me a prescription). Sadly, she moved out of state after about 3 months, and my search began again.

I really don’t remember much of the details at this moment, but I do know at one point I was taking roughly 15 different meds up to 4 times a day. It started with one med, then another med to combat side effects, and another to augment the first, then another to help with side effects from the one helping with the original side effects, and so on.

The meds didn’t work for me. I kept getting more depressed, more anxious, and more suicidal. I cycled in and out of hospitals. Each time, they added meds, or switched them out, or increased doses, or all of the above. None seemed to help.

They started blaming me for complaining about the side effects. I was called willful and resistant to treatment. I was told I was being manipulative; that I didn’t actually want to be helped; that I was enjoying the depression; that I was not trying hard enough to get better. I was told I would never be able to live without medication; that I needed to accept it as a part of life… at one point, doctors told me that I would never be able to survive on my own because of my level of self-sabotage.

I was seriouslly depressed, constantly anxious, extremely impulsive, and actively suicidal 90% of the time, not to mention my mounting ptsd symptoms (an enormous difference from my demeanor when not on meds, but few people had seen me prior to starting them by this point. Even I was mostly convinced that I would certainly die without meds (which was honestly part of what prompted me wanting to stop them. At least if I managed to kill myself, the pain would end)).

During one of my last dozen hospitalizations, it was strongly suggested that I not be released back to my home, but rather permanently be sent to a residential facility, as I was an inherent danger to myself. The doctors were shocked that I had survived this long. Even less believable to them was that I had a successful life and career prior to my most recent hospitalizations. I had held down a full-time supervisory position, as well as 3 other part-time jobs up until that final year on meds. I would be hospitalized one week, then return to work as soon as I was released. I attended intensive therapy programs during first shift hours, and worked in the afternoons. I taught trauma informed care workshops. I attended professional trainings. I was very high functioning professionally even as I was crashing personally…

I was lucky enough to have family and friends on my side backing my insistence to receive more intensive treatment (mind you, this was 4 years after I started meds, and roughly 40 hospitalizations in by that time). I knew I was metaphorically drowning. I knew the treatment I was getting wasn’t sufficient (most psych units, even in psych hospitals, don’t offer therapy so much as physical containment), but I did not totally know what might actually help. Dr C was a great resource. She helped me figure out that a specialized trauma program would likely be beneficial. She’d also advocated strongly with the doctors at the local hospital to send me to a more intensive program. Between her, my family, and my own insistence, I was finally admitted to a trauma clinic, The Center at PIW.

There, I finally found some meaningful & intensive help. Despite reading my recent history, the psychiatrist agreed to help me come off all the meds. By the time I left there 2 weeks later, I had tapered off most of the meds. Those last ones I was able to come off of with the help of the psychiatrist at the day program I attended following my discharge from The Center.

The first day back to the IOP, the staff commented that I was doing the best they had seen since I first attended there 4 years ago. They said I seemed clear-headed, articulate, calmer… they asked what changed. When I mentioned I was tapering off the last 2 meds, they seemed incredulous. After all, how could the person who was so debilitated for so long be better not taking the thing they believed was her biggest hope at normalcy? Initially, the psychiatrist was ready to refuse treatment because I was refusing to take medication again, but upon seeing how differently I presented, I was allowed to stay in the program. I was, however, requested not to mention that I was no longer taking any regular psych meds. They claimed it was to avoid compliance problems with other patients in the program. I guess I was seen as an oddity.

After my shortest time “completing” the program (3 weeks or so), I was deemed stable enough to graduate. I returned to only doing individual therapy & the trauma group with Dr C.

Since that time (2011), I’ve only tried psych meds 3 times. Each time I noticed the impulsive drive to kill myself return in less than a week’s time. They faded just as quickly once I stopped taking the pills. The depression still hits hard, but suicide is no longer my first and only thought on how to deal with it. I’m also better able to avoid cutting (actually, I rarely think about using it as a coping tool these days).

Doctors still react with shock and disbelief when I deny being on psych meds despite my diagnoses. I’m pretty sure most believe I’m lying when I tell them I only take something for asthma and stomach issues. Even the neurologist did a side-eye when I mentioned the only 2 meds I take aside of the pot.

In a society where pharmaceuticals run the medical industry, and they are the be-all & end-all of mental health treatment, not taking meds is seen as going against medical advice. Hell, we take away people’s basic human rights when they say meds don’t work so they’d rather not take any. They are deemed an immenant danger to themselves, and not competent enough to make rational decisions… all because something we are indoctrinated into thinking is the only way to treat mental health issues harms some people more than it will ever help them.

I can’t tell you how much I loathe the phrases “you just need to find the right meds or combinations),” and “the benefits outweigh the side effects.” Sometimes there is no right combination, and the benefits definitely do not outweigh the side effects (because for some, there are no benefits). I wish medicine understood this…

Maybe we need to start another movement; that sometimes meds do more harm than good, and there’s nothing wrong with choosing not to take them. There are several notations in my records that insist I’ll die within 6 months max if I were allowed to stop all psych meds, yet here I am, 7 years later, more stable than I ever was on the meds. Oh, and check it out, I’m still alive! Who knew that was possible?! 🤔

It’s time we stop forcing everyone with mental health challenges into a medication routine. They can definitely be helpful for some, but we also need to acknowledge that they can be detrimental to others.


update on Neuro appointment

I had an appointment with the neurologist yesterday morning. He took history, did a Neuro exam, and did some nerve testing on my arm. I have to go back tomorrow morning for the same testing on my legs… I’m kinda anxious about the testing on my leg. It’s not really painful or scary, but I expect it to be triggering. He’ll use mild electric current and sensors to test nerve conduction (there’s also a needle part, but I’m trying not to think about that).

There are two potentially triggering times; 1) if he tests nerves above the knee (I’m thinking about insisting that the testing remain below the knee. I don’t really care if it doesn’t yield complete results. My goal is to avoid flashbacks and panic while he’s got needles stuck in my muscles). 2) later tomorrow night when the points he tested are sore and cramping. With my arm, it felt like someone was pushing their thumb into my arm at those spots. It was uncomfortable, but I could talk myself out of panic because it was just my arm. I’m not confident I’d be able to do that if I felt the same on my thigh. I don’t really think the leg test will show any results different from my arms, so there’s no need to risk a flood of triggers and flashbacks, especially with Dr C still on vacation for 2 more weeks. I know I could talk to her fill-in about it, but that would only come after a weekend of dealing with it… I’m not really up for that right now.

Is that a stupid choice in terms of diagnosis? I dunno. So far, everything’s come back normal except for the d-dimer test. If nerves in my arms aren’t damaged, there’s little likelihood nerves in my leg are. After all, my arms often hurt more than my legs, and I’ve not experienced the same weakness with them. So, yeah. I think I’ve decided to insist that he keep the testing below the knee.

He’s also ordering a special blood test, though I forgot to ask what he’s testing (will do that tomorrow).

I’m not really much closer to answers at this point. It’s still very frustrating.

L and I took the dogs out to a park today. It was really nice to get out, and I pushed myself physically because I’m stubborn and I really miss being in nature. We sat or rested 2/3 of the time (much to the dogs’ frustrations), but it was nice. I’m now paying the price for my stubbornness. My muscles are complaining (weak, tense, painful), and I’m super fatigued. I’ve even gone back to taking pot several times since the outing because of the pain… on the plus side, while I still had a lot of trouble breathing, it wasn’t nearly as bad as 2 weeks ago. The inhaler helped some. The Advil helped some. The pot helped some… and I was able to catch my breath about an hour after getting home. Not bad considering it would have taken more than twice that long even last week.

Anyway. I guess I just needed to write out my reasoning for limiting the testing he will do tomorrow. I know it might sound stupid to some, but… flashbacks suck.

Here’s hoping something brings definitive answers.


nightmares

Haven’t woken that terrified from a nightmare in a long time… the current president started a nuclear war, and bombs were going off on the horizon. Everyone I was close to was out and about at the time. There was nowhere to go to be safe, and the other people in the room just watched out the window at all the mushroom clouds…

I can usually wake up and ground myself, but the fear from this one isn’t leaving as easily (doesn’t help that whatever this ailment is effects my heart rate. It shoots up with the slightest effort, and stays there for the next few hours)… also doesn’t help that current leadership is stupid enough to do something like that… 😟😭

It’s weird; the nightmares of the past that should truly terrify me simply make me numb, but ones like t-rex from Jurassic Park finding me no matter where I hide, and this morning’s nightmare… I can’t shake them after I wake up. There’s something to be said for dissociation and numbing. It certainly makes life emotionally easier to float through.


Decisions…

If you had a set amount of money, and had to pick between the following, how do you prioritize? (All cost roughly the same)

  • pain meds
  • compression sleeves & leggings
  • glasses

All of these are things I need, but I can only afford 1 of them…

So yeah, how do you prioritize? Pain meds are needed to keep me functioning, but the compression wear would also help… also, I need glasses to see, and my newest ones are breaking (after only 4 months… don’t waste money on glasses from Target. They used to be decent (my first pair lasted over 3 years), but now they are made from crappy materials)…

Ugh.

I’m so torn.


run down.

I just want to cry… everything hurts again because I overdid physical activity today (oooohhhh… folding 2 loads of laundry and carrying one upstairs… SO strenuous… ::rolleyes::)

This sucks.

And I know that the neurologist won’t find anything either, coz none of the doctors have yet, so why would he be any different??

I should just save the cash, and keep hiding on the couch. Why waste money we don’t have just to be told there’s nothing wrong with me?

Dr C leaves for her vacation this weekend. The therapist she suggested to see in her absence called, but… what’s the point? Again, more money we don’t have spent trying to figure out how to talk to someone I don’t know, and will likely not see again… :/

I managed about an hour nap today, so insomnia rules dictate that I’m not going to be able to sleep much again tonight.

Have mentioned I’m tired? Emotionally, physically… I’m spent.

I should try my original pot tonight. I haven’t smoked it much since getting my card, mostly because smoking hurts my lungs for the next few days. But maybe I haven’t gotten so tolerant of it. The other formulations we have used to kick my butt to the curb. I’m lucky if they let me nap for a few minutes after taking them. Maybe the flower will let me sleep…


Insomnia, or…?

I don’t want to go to sleep. I can feel my anxiety building. The dread is creeping in. It feels like something horrible will happen when I go to bed…

I know it’s echos of the past, but it’s still difficult to shake.

I can feel the beginnings of body memories sparking up.

I don’t want to do this right now.

I don’t want to go to bed.

I don’t want to fight the monsters that will inevitably follow me there.

I don’t want to have to deal with this right now…

It’s always much worse when the depression kicks up, and it’s certainly kicking. Between this mystery ailment, financial issues, uncertain living situation, Dr C’s almost month-long vacation (which I’m having a very little kid reaction to for some reason)… It’s all overwhelming. And now the flashbacks are picking up again; starting with the body stuff.

I’m so tired of all this. It’s such a frustrating cycle. Even when one thing gets resolved or situated, ten other things take its place.

I give.

Uncle.

Please?

One of my biggest worries is that I’ll go to this consult next week, have some more cursory testing, but ultimately have this guy come to the same conclusion as everyone else: “I don’t know what it is. All your tests are fine”

If everything is so fine, why can’t I physically function? Why am I constantly out of breath from simple, everyday tasks? Why do my limbs hurt and cramp? Why is my grip weak? Why does it take me 2 hours to catch my breath after a short walk from the building to the car?

I really hope the doctor has at least some validation, if not answers.

I’m so tired of all this…


Insomnia and a bit of rambling

Insomnia is back… it’s not like i sleep during the day, though I’m too tired to do much…

I’m not yet tired at the point L goes to bed, so I stay up. Then, it’s suddenly 12:30am and I’m still wide awake.

Even if I can manage to fall asleep now, I’ll be awake again soon… back to only really being able to sleep once the sun is up. It doesn’t work well with others’ schedules.

I have Dr C tomorrow, then I have to tackle cleaning the apartment and laundry. I can’t remember when L works, but hopefully we can do those chores together.

I only ended up taking pot twice today; mostly for anxiety. My legs are still cramping, and my arms are still sore, but not nearly as much as they were. I’m still as easily drained, and as physically exhausted as I have been for the past 2 months. I hope that will ease up on its own soon too. Of course, I can feel my abdominal pain again. I guess the pot was helping that as well. Maybe now I can check back with the gi doctor and figure this out. I know at one point she had mentioned endoscopy. Maybe that would be a good way to rule out other stuff… :/

I want to feel ok. I want to be able to function again…


Sorry for being m.i.a….

I’m still trying to figure out this muscular stuff.

It’s weird and annoying. And now I’m exhausted all the time, running out of breath just from simple, everyday tasks (yesterday it took almost 2 hours to recover from a 30 minute shower)…

At least the neuro appointment is coming up on the 11th. I managed to find someone other than my pcp’s referral. I’m hoping he will have answers, it’s just a matter of getting through the days to the appointment…

My muscles still cramp from any exertion. I’m still dropping things regularly… but I haven’t needed anything for the pain yet today (it’s tolerable without taking meds, though I’m not sure if that’s because my tolerance for it has gone up, or because it’s less intense). Today is the first day since this all began almost 2.5 months ago that I haven’t needed pain meds as soon as the last batch wore off. I’m feeling the cramping in my legs, but it’s not horrible.

My depression is increasing the longer I deal with this tough. I don’t want to do anything, or leave the house really… and for the first time in a while, Dr C’s vacation is causing anxiety…

On the plus side of things, more medically-minded people have suggested that this might be a viral thing I’m dealing with, and not anything majorley life-altering (as long as it passes). The small improvements over time suggest that I’m headed to the other side of whatever this is. I hope they are correct. I’m quite over this whole being sick thing.