Monthly Archives: March 2018


I thought maybe the pain was getting better a bit. Yesterday was a good day. I was able to move around and function with minimal pain. I didn’t need to take pain meds all day. It was so nice, I thought for a second that maybe whatever this muscular stuff was had started to go away…

Well, I was mistaken.

I woke in the middle of the night to cramping in both arms & both legs. I don’t think I slept more than a few hours because of the pain. There was no way to get comfortable. Heat didn’t help. Cool didn’t help. Stretching didn’t help…

I really hope that neurologist’s office calls soon, and that they have something that helps.


Acute pain issues (in the past 5 weeks or so)

Waiting on medical referrals to go through is stressful. I just want to figure out why my extremities hurt so much & are getting weaker, and how to fix it… also, it would be nice to skip pain killers 24/7 so maybe I could function better once again?
It feels like someone’s inserted pegs into my bones and the muscles shred on them every time I move. Moderate pressure feels good for a few seconds, but then it turns to pain. Light touch and deep pressure both are painful. Movement hurts. Heat feels better for a bit, but then it becomes uncomfortable. Cold just hurts right from the start… I’m starting to have trouble with fine motor skills, especially gripping smaller objects like pens or keys (sucks when I try to do art or write… even the Swype function on my phone is painful). Stretching feels better only because it’s a different kind of pain than what happens when I’m resting or actively doing stuff…

I really hope this Neuro referral comes through quickly, I can get in to see someone, and they actually have answers for me. So far, it’s all been “I don’t know; your tests are all normal”

Driving is really painful so I’ve been relying on others for rides since Friday (it doesn’t help that I’m taking the medical mj constantly to keep the pain bearable. There’s no way I’m driving while taking it, or any other prescription pain meds they may try to give me). I drove myself to the urologist this morning because the weather made L too anxious to drive. I had trouble keeping the level of pain under wraps without the pot…

I’m really hoping for simple answers with easy remedies, and soon! My PCP’s office resent the referral today (Wednesday) after it was supposed to have been sent Friday.

I’m trying to no longer let my brain run away down “worst case scenerios” lines of thinking, but it’s difficult. The pain and impairment of function feels like it’s growing daily. I have to have some answers, or at least some relief, soon so I can continue my job at the kennel, keep going to therapy, maintain my independence, and take care of my family… I have to admit though, I’m super grateful today was a snow day. I worked yesterday and my whole body was exhausted and more painful. I’m not sure I can do the two days in a row right now. I might have to plan to spread my shifts out so I can recover between them.

Even now, my arms and legs feel as if they were burning and being stabbed and tightly bound all at once… it’s not excruciating as long as I can dissociate most of the pain… it’s starting to wear me down though, and I’m having more trouble distancing myself from the increasing symptoms… 😦

working helped

I was still struggling with dissociation and being stuck in my head most of Wednesday. Nothing i was trying helped to bring me out of it.

Luckily, I had work that afternoon.

I pleaded with the universe to make it an easy, but distracting shift. She came through for me.

I ended up training a new hire, so I had to constantly think of what I was doing, why, and explain it to her. The dogs were also relatively mellow (though the look on the girl’s face when I mentioned that it was an easier day makes me wonder if I’m not just habituating to a higher level of chaos).

In the end, spending time with the dogs, and having to interact with another human for the whole shift helped ground me for the evening.

I did wake up to some intrusive, uncomfortable thoughts, but overall, today has been much more “present” (Though let me not jinx that at 9am)…

I had some bloodwork to get done this morning, and I was supposed to get a CT scan done at 8, but I messed up the directions, so it’s been pushed to 1pm. I could have gone through with the 8am thing, but it wouldn’t have given the greatest results. I’m having ongoing gi issues, so I want to make the scan worth the effort. I already feel like most of this stuff is “in my head” since previous testing hasn’t shown anything… but then again, my aunt had gi issues for over a decade before the testing finally showed the real problem. I don’t want things to get that advanced in my case…

I hate having to balance worrying that I’m just experiencing psychosomatic stuff with legit medical issues. Dr C says it’s all valid, and even if it does stem from past trauma, there’s still likely a physical reason as well, it’ll just take more time to figure it out…