The hunt for med records (fun times)

I decided to try to track down my complete medical records for my own information. I’m tired of having incomplete answers for new providers when they ask what had worked or not worked and why. The problem is, when you have a mental health diagnosis of any kind,  it’s arbitrarily up to whomever holds the records whether or not you are able to even see said records, forget get a copy of them. The excuse is that it “may negatively impact [my] mental health” to see some of the information.  I understand concerns around information, but I would prefer that determination to be made by myself when I am trying to coordinate my own care. So I’m sitting here in the social security office hoping that the manager decides I’m ok to get a copy of my full records.  I know why I applied for disability. I know my list of diagnoses over the years, I just want to be able to advocate for effective treatment… and hopefully I can get to a place where I can reliably work again.  But in order to do that, I need to get some more intensive and specific treatment going. :sigh: such a process.

I think regardless of one’s diagnosis, a person should always have the right to see their full medical record… but I guess that’s just my opinion. Going on hour 2 waiting at the local social security office… (Trying to also figure out what in my record allowed them to so quickly approve me for ssdi, as most people I have spoken to were denied the first few times around. I’m certainly happy they did it, but what in my paperwork made it so glaringly obvious that I can’t work at this time, other than my millions of hospitalizations and spotty recent work history)…

UPDATE: so after 2.5 hours of waiting, I was able to get the paperwork going for them to make a disc of all my records used in my determination, plus anything they may have gotten afterwards.  They did not seem to give me a hassle around the request, and the information should be ready for pick up by Monday or so.  I hope it will be the complete records as they have them, and hope that it will help me some in figuring out next steps for treatment.  I’m really tired of this emotional roller-coaster.  I want to find something that works, and throw myself head-long into it so that I can move past all this and get back to living… because this limbo is exhausting.


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